What Now?

Enough is enough! I felt great for one day then plummeted down again. Back with the fevers and so very tired.

I was on the Prednisone for 5 days then off for 3, now back on again so I am still hopeful it will kick whatever I have.

It is affecting my interest in making my mosaics as every time I go into my room I feel ill.
My husband went in there early this morning and checked for any mold or mildew(which I am allergic) and steam cleaned all the powdery substance on the carpets that creep in there from cutting dish tiles.  He also sprayed some Clorox and water solution along the baseboards to kill any molds.

I sure hope this helps because I don't know what I will do if I can't make mosaics.  I have a sinking feeling the powder is getting to me.  This is something that I remember learning about having fibromyalgia; a heightened sense of smell as well as higher sensitivities to airborne particles.  All the nasal sprays I have been using arent' helping at this point.

I am beginning to get a small picture of what Job must have felt. lol

However, my foot seems to finally be on the mend. I quit stretching it and just let it be the last several days and it seems so much better.

Until next time :)

I Have Joined the Living

OMG, I cannot believe how much better I am feeling now that I have my sinus infection under control.  I get up and actually have interest and energy to do something. Hurray!

I still can't walk.  I can get from point A to point B, but actually walking for exercise is not happening.  Honestly, who would think this foot thing would still be a problem all these months later.  Anyway, I am swimming now just to keep the body from getting too stiff, bringing on fibromyalgia problems.

I use one of those "noodles" to hang on to and kick my legs back and forth not only to keep the circulation going, but hopefully to loosen whatever it is that keeps my ankle stiff and making it hard to walk. 

I tried just swimming around the pool without any floaty but the days following were killer on my back and shoulders as it was just too much for me all at once. Gotta go slow which is a hard thing to do in the pool as you can't really feel what you are doing to yourself.

I hope each of you had a good 4th of July.

Until next time :)

Are We Halfway There?

It is so hard to believe we are halfway through the year already. This has not been a good one for our country and not so hot for me either.

I am still battling this foot problem, but the doctor told me yesterday to try some new stretching exercises so we'll see. He did say that the elevated pain is more than likely caused from fibromyalgia but with a sprain or whatever I might have now it would depend on how bad it is and he doesn't really know without an MRI.

I am trying to get over a terrible sinus infection that must have started some time ago as I haven't really felt well for months.

I went to the Urgent Care Facility on Saturday and was given a Z-pack and a prescription for Prednisone. I have finished the Z-pack and still have headaches and fevers so I am now on the prednisone.

On top of that I seriously burned my wrist with my steamer. How you say? Well, it's really a clothes steamer that I use to put some steam into the air for my sinuses. I turned it on and added some scents and then went to reach for something just when it decided to steam and spew out boiling hot water. UGH, I shouldn't be let out alone anymore.LOL

I certainly hope the next 6 months are better as I don't think I could make it as I am worn out.

Until next time. :)

You Have to See This!

I don't know how many of you watch "America's Got Talent" but this video of these two sisters who have Cystic Fibrosis is so heartwarming that I just had to share it with you.

It is so wonderful to see people, especially children, that some how just move past all the pain and misery and find the silver lining in life.  Their song choice was moving and perfect for their situation.




Definition of Cystic Fibrosis from the Mayo Clinic:

Cystic fibrosis is a life-threatening disorder that causes severe lung damage and nutritional deficiencies.

An inherited condition, cystic fibrosis affects the cells that produce mucus, sweat and digestive juices. Normally, these secretions are thin and slippery, but in cystic fibrosis, a defective gene causes the secretions to become thick and sticky. Instead of acting as a lubricant, the secretions plug up tubes, ducts and passageways, especially in the pancreas and lungs.

Cystic fibrosis happens most often in white people of northern European ancestry, occurring in about 1 out of 3,000 live births. In the past, most people with cystic fibrosis died in their teens. Improved screening and treatments now allow many people with cystic fibrosis to live into their 50s or even longer

Until next time :)

Is Fibromyalgia Causing This?

Most of the time I can deal with the pain that I get from having fibromyalgia.  I don't like it.  It has certainly affected how I live my life, but I am beginning to get a handle on what will make it worse.  Or so I thought.

I have been dealing with the after affects of fracturing my foot for nearly 4 months now.  I still can't walk and beginning to wonder if I ever will again.

My doctor told me that the tendons may need to be stretched after wearing the boot for 3 weeks, but even he thought there was no way I could have that much of a problem in such a short amount of time.

Now I am wondering if the fibromyalgia is causing this horrific pain.  I don't say that lightly either as I have worked every day on stretching out the tendons on the top of my foot as well as the one running up the back of my knee.  I used to be able to sit on my legs and now I can't as the pain sears through me.

The pain is so intense that if I work on my foot for too long I actually get physically sick.  I have had lots of pain in my life, but nothing that compares to this and no matter how much I work at it I still can't walk.  It feels like the tendon is so tight that it's going to snap in half.

I went to my chiropractor the other day and he did adjust my ankle and told me the tendon was very rigid.  I felt instantly better for about 10 minutes then it tightened back up again.

I believe that there is a very good chance that the pain is increased considerably because of fibromyalgia.  There is no other explanation for it that I can see.  Who has this much pain from wearing a "boot" for 3 weeks?  I hope to find out when I see my doctor on Tuesday.

I don't know what I can do differently and the pain is still very real to me even if it might be magnified by my illness.  I would like to think I might walk again.

Until next time :)

How Would You Describe Yourself?

I am following a lovely blog called Seeking Equalibrium and Rosemary was posting a sort of game where you describe yourself (as of this moment) using 25 adjectives so I thought I would give it a try, just for fun.
It definitely opens you up to being honest with yourself and puts it all out there.

Tired
Heartbroken
Angry
Frustrated
Lonely

Scared
Faithful
Loving
Kind
Compassionate

Caring
Distrustful
Hopeful
Thoughtful
Cynical

Talkative
Perfectionist
Creative
Helpful
Depressed

Funny
Deep
Nervous
Dry Humored
Passionate

Well, that's a little scary.  It is the truth, for today anyway,  so I shall leave it alone.
Anyone else want to give it a try? Let me know if you do.

Until next time :)

Swimming Anyone?

I have decided to swim each night since walking around the neighborhood isn't working for me as my right foot still isn't 100%.

I used to swim everyday when we first moved here 7 years ago and loved it.  I still do love it, but my body screams the next few days.  It is amazing that a little paddling around can cause such a problem now for my body.  I used to do an entire workout routine and hardly feel anything.  I know, we all used to do so much more, huh?

Fibromyalgia is a tough illness because you can't feel what you are doing to yourself at the time.  It's only over the next few days that let you know you may have overdone it.

I suppose if you were to swim every single day and gradually build up to a routine that your muscles wouldn't complain as much.  It's kinda scary to think that something so minimal can cause such grief.  Even my pain pills can't eliminate all of it.

I am not giving in to it though.  I will continue to swim until I can walk again as I refuse to let this illness dictate to my life any more than it already has.

Exercise is recommended for fibromyalgia patients and I know in the long run it's better for the body.

Until next time :)