To make a long story shorter, my doctor (who is no longer my doctor) placed the wrong order for the MRI and the technician took the pictures my hip rather than my lower back. It took all I had to get through the 45 minutes doing the first one as I also suffer from panic attacks and if anything was going to give me a panic attack it was someone telling me I had to lay on a hard metal table right on my sciatic nerve with no pain meds for 45 minutes and not move so much as an eyelash.
Needless to say, I found another doctor and she immediately suspected I suffered from fibromyalgia and set up an appt. with a rheumatologist. At this point I was still very skeptical that I had fibro as I didn't really have the kind of symptoms I saw in some of my friends who have it. I didn't think I had any tender points at all.
The first thing the rheumatologist did was squeeze those "fibro tender spots" and I about went through the roof with the pain. She told me that half her patients suffer from fibro in one form or another and that it doesn't generally worsen in time, which was a good thing. She also informed me that there is no known reason for it's occurance and that the studies are still very new.
Before I left her office she had scheduled me for PT for 3x a week for 2 months. It was the best thing I ever did. I learned so much about how the muscles work and why it is important to keep it up.
When I think back now to all those times I have been misdiagnosed and all the paces I was put through it makes me very angry. That is one of the primary reasons I chose to do this blog. I am hoping others will get the information they need and to find the right doctor. I am hoping people will comment with their stories so that others can learn from their experiences.
I have seen a total of 4 chiropractors, 3 doctors and one physical therapist before anyone diagnosed me correctly. I have had countless x-rays and one MRI and ten years or more of my life taken away because of misdiagnosis. It seriously affected where I went from restaurants to traveling because I couldn't sit on a hard surface for more than about 15 minutes.
I am by no means saying that every ache of the muscle means fibromyalgia, but if you have never had any severe injuries and you are experiencing chronic muscle aches and pains you may want to see a rheumatologist.
My mother passed away on October 8th of 2006 and my father a little more than a month later on November 28th. I wish I would have had the correct information about this illness prior to that time as I would have been in much better shape and could have stayed with them until the end.